Tell us
what research would help diabetes

Feet!

blue square
blue square

Tell us what research would help diabetes

Feet!

Welcome to the Round Two Survey

Thank you for submitting your valuable questions in the Round 1 survey, where we asked you to "tell us what questions about diabetes-related foot health and disease you'd like to see answered by research!" We had a very positive response with 210 people submitting a total of 434 questions. Since then, the research team has been busy preparing the questions for Round 2 and below is an overview of the multi-step process we followed. If you would prefer a detailed summary of the guidelines for editing questions, please contact Dr. Byron Perrin on [email protected].

 

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Categorise Questions

The 434 questions from Round 1 were reviewed and 22 categories of diabetes-related health and disease were created. All questions were then assigned to a category and reviewed to see if they should be excluded.

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Identify Duplicates

A check for duplicates was then undertaken, and where required the responses were edited for consistency. Following this review, a final set of 226 questions were identified.

Review 2

Question Review

At all stages at least 2 members of the research team checked decisions made, and a member of our team with lived experience of diabetes related foot disease reviewed all Round 2 questions.  On their recommendation, we have developed a glossary of terms that may be unfamiliar. 

Please note it is possible that you may not see your exact original response from Round 1. This is likely due to the process of removing duplicates and providing some consistency to the formatting of questions.

Round Two Question Categories

From the Round 1 survey we identified 22 categories. In the Round 2 survey, the questions are displayed under these categories to help you navigate through the list and select the questions that matter to you most!

Questions with a focus on taking the pressure off the skin of the feet.

Questions with a focus on circulation or peripheral arterial disease.

Questions with a focus on sensation in the feet or peripheral neuropathy, including painful peripheral neuropathy.

Questions with a focus on diabetes-related foot infection.

Questions with a focus on wound healing interventions, including wound dressings and other applications and interventions related specifically to the wound.

Questions with a focus on CN, a chronic, progressive condition of the bones, joints and soft tissues most commonly of the foot in people with diabetes and peripheral neuropathy.

Questions with a focus on lower limb amputation.

Questions related to psychological, sociological or behavioural aspects of diabetes-related foot health and disease, including quality of life.

Questions with a focus on the epidemiology of diabetes-related foot disease, including investigating the prevalence and predictors of foot complications.

Questions with a focus on education for people with diabetes or health professionals on diabetes-related foot health and disease.

Questions with a focus on the health service design or delivery for diabetes related foot health and disease.

Questions with a focus on mortality or life expectancy.

Questions with a focus on health economics of diabetes-related health and foot disease.

Questions with a focus on the use of technology in the field of diabetes-related foot health and disease.

Questions that generally relate to assessment, screening or diagnosis of diabetes-related foot disease that weren’t specifically covered in other categories.

Questions that generally relate to management of diabetes-related foot disease that weren’t specifically covered in other categories.

Questions that generally relate to prevention of diabetes-related foot disease that weren’t specifically covered in other categories.

Questions with a focus on the role that the blood glucose management or control has on diabetes-related foot health and disease.

Questions with a focus on the role exercise has on diabetes-related foot health and disease.

Questions with a focus on Aboriginal and Torres Strait Islander people’s diabetes-related foot health.

Questions with a focus on the role nutrition has on diabetes-related foot health and disease.

Questions with a focus on the translation of research evidence on diabetes-related foot health or disease into clinical practice.

Round Two Glossary

Some questions in the Round 2 survey may contain definitions that you'd like to learn more about. Listed below is a glossary of some of the more clinical terms found in the Round 2 survey.

A chronic, progressive condition of the bones, joints and soft tissues most commonly of the foot in people with diabetes and peripheral neuropathy (loss of feeling) that can lead to fractures or bone breaks in their foot that can go unnoticed.

A procedure for cleaning a wound and removing the callus, infected skin and other dead tissue from a wound.

Being able to measure how much pressure is being placed on the bottom of the foot during standing and walking.

A type of medicine used to treat pain.

A special wound dressing made from the patient’s own blood.

A special ultrasound machine for measuring circulation is typically called a Doppler (ultrasound) machine and it provides a print out of the phases of blood. A monophasic Doppler waveform indicates there is some restriction in the blood flow to the foot.

Orthotic or insole devices that can be placed under the foot to control the movement of the foot.

A neuropathic ulcer is an ulcer on the foot that is mainly caused by peripheral neuropathy (loss of sensation).

A health professional who specialises in making footwear, footwear modifications and other orthotic devices for the feet.

With respect to a foot ulcer phenotype, this refers to the characteristics and cause of the ulcer.

A type of stress on the skin of the foot, that is like friction rather than direct pressure.

Perception or awareness of the position and movement of the body.

A part of the body situated nearer to the centre of the body.

Medications used to treat type 2 diabetes.

Factors that may influence the health of a person from their social surrounds, such as their education, income, employment and social support levels.

Surgery to remove the front half of the foot.

Accessing the Round 2 Survey

The Round 2 survey is now open to all participants from the Round 1 survey to select 'up to ten questions' that matter the most to them. Each Round 1 participant has now received a 'Round 2 survey link' that was sent to the email address provided in the Round 1 survey. If you participated in the Round 1 survey and have not received an email - please check your 'junk' folder or email us at [email protected] and we can send through your survey link.

 

Survey link emailed

The Round 2 survey link as now been emailed to all participants from the Round 1 survey.

Survey now open

The Round 2 survey link is now open to complete until Sunday 29 November.

Questions

Please feel free to email [email protected] if you have any questions about the survey or the study.

Why is foot health research so important?

At the heart (or foot) of it, research aims to identify new treatments, prevention, and improve care. It can lead to new discoveries, development of new tools and procedures or highlight important trends and risks. Research can also help health care professionals to follow the most effective methods of care.

In Australia, a whopping $4 million is spent each and every day just managing diabetes-related foot disease. And when we look at the statistics below, it doesn't take much to see how quickly those costs could increase.

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Every day in Australia

0

MILLION is spent managing diabetes-related foot disease

0

Australians are living with a diabetes-related amputation

0

Australians are living with diabetes-related foot disease

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Australians are at-risk of developing diabetes-related foot disease

Why is foot health research so important?

At the heart (or foot) of it, research aims to identify new treatments, prevention, and improve care. It can lead to new discoveries, development of new tools and procedures or highlight important trends and risks. Research can also help health care professionals to follow the most effective methods of care.

In Australia, a whopping $4 million is spent each and every day just managing diabetes-related foot disease. And when we look at the statistics below, it doesn't take much to see how quickly those costs could increase.

0

Australians are living with a diabetes-related amputation

0

Australians are living with diabetes-related foot disease

0

Australians are at-risk of developing diabetes-related foot disease
DFA_patientsicon_white_web
Every day in Australia

0

MILLION is spent managing diabetes-related foot disease

How does the survey work?

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Three
online surveys

It doesn't take much time to make a big difference.

We'd need you to participate in 3 surveys over a period of 3 months for around 30 minutes in total. The online surveys are anonymous, interactive, with the information provided then used to help us shape Australia's top 10 priority research questions in the field of diabetes-related foot health and disease. You can access the survey using your computer, tablet or phone! 

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We just need

0

minutes of your time to have your say in all three surveys
Round One V1

Survey has
closed!

Tell us the questions you'd like to see answered by research!

All questions are important, no questions are wrong, and questions can be as simple or complex as you'd like.

In Round One

We’d like to find out what’s important to you, based on your own experiences. This could include topics from living with, assessment, diagnosis, to treatment of diabetes-related foot disease. You can ask up to three questions you'd like answered by research. All questions are important, no questions are wrong, and questions can be as simple or complex as you'd like. It's completely up to you!

Round One V1

Survey has closed!

Tell us the questions you'd like to see answered by research

In Round One

We’d like to find out what’s important to you, based on your own experiences. This could include topics from living with, assessment, diagnosis, to treatment of diabetes-related foot disease. You can ask up to three questions you'd like answered by research.

Round 2 v1
NOW OPEN TO ROUND ONE PARTICIPANTS

November Survey

Choose the questions that matter to you most

In Round Two

The full list of questions found in Round One has now been prepared in the Round 2 survey. A link to the Round 2 survey has been sent to all Round 1 participants via their email address advised in Round 1.

Round 2 v1
NOW OPEN TO ROUND ONE PARTICIPANTS

November Survey

Choose the questions that matter to you most

In Round Two

The full list of questions found in Round One has now been prepared in the Round 2 survey. A link to the Round 2 survey has been sent to all Round 1 participants via their email address advised in Round 1.

Round 3

December Survey

Rank the questions to help build the national priorities

In Round Three

From survey two, we’ll then provide a list of top ten questions. All participants will then rank those top ten to help us determine the overall national diabetes-related foot disease research priorities.

Round 3

December Survey

Rank the questions to help build the national priorities

In Round Three

From survey two, we’ll then provide a list of top ten questions. All participants will then rank those top ten to help us determine the overall national diabetes-related foot disease research priorities.

What's this study about?

Did you know that every two hours someone in Australia will under-go an amputation as a result of diabetes-related foot disease? Did you also know that diabetes-related foot ulcers are reported as the leading cause of amputation in Australia? For a little known disease, the statistics are confronting. But it does make you stop and think about the reasons why, and leads to one very important question. What can and should we do to end avoidable amputations within a generation?

To help tackle this important question, DFA in partnership with La Trobe University is building the "Australian Research Agenda for diabetes-related foot health and disease".  The study aims to determine what a broad range of people think are the most important questions about diabetes-related foot health and disease that should be answered by research. But to build it, we need your valuable thoughts and ideas.

We have now completed the Round One Survey. All participants from Round One, have now been invited to complete the Round Two survey.

La Trobe Ethics Approval

how much money is spent on foot research?

That's a good question.

Currently, diabetes-related foot disease receives less than 0.2% of Australian diabetes research. Between 2011-2015 research funding was less than $1 million. It certainly puts the $4 million spent each day managing diabetes-related foot disease into perspective.

This is where we need your help. We want to develop a national research agenda to identify what Australia's future research priorities should be in this area and improve national research funding for diabetes-related foot disease. .

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Diabetes related foot health receives less than

0%

of ALL Australian diabetes research funding
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"Little is known about what research priorities Australian stakeholders consider are important. This information is needed to plan how Australia can meet the challenge of ending avoidable amputations in the near future." 

how much money is spent on foot research?

That's a good question.

Currently, diabetes-related foot disease receives less than 0.2% of Australian diabetes research. Between 2011-2015 research funding was less than $1 million. It certainly puts the $4 million spent each day managing diabetes-related foot disease into perspective.

This is where we need your help. We want to develop a national research agenda to identify what Australia's future research priorities should be in this area and improve national research funding for diabetes-related foot disease. 

.

research-512 (1)
Diabetes related foot health receives less than

0%

of ALL Australian diabetes research funding
DFA_patients group

"Little is known about what research priorities Australian stakeholders consider are important. This information is needed to plan how Australia can meet the challenge of ending avoidable amputations in the near future." 

so how does research help?

Check out some diabetes-related foot disease research from all around Australia that highlights just a small sample of the impact foot research can make.

This huge study – led by Dr Yuqi Zhang from Queensland University of Technology analysed an enormous amount of data from the "Global burden of disease study" to estimate the diabetic foot prevalence and disability burden numbers for 200 countries, 20 regions, 20 age groups and one planet.

An excellent new Australian study led by Dr Angela Searle and Prof Viv Chuter from the University of Newcastle has reported that calf muscle stretching alone in people with diabetes does not increase their ankle range of motion nor reduce their forefoot plantar pressures.

This new Aussie research led by Dr Emma Macdonald and Dr Byron Perrin from La Trobe University performed focus groups and surveys on 53 diabetes patients and is one of the first studies to explore our patient’s barriers and enablers to using new smart insole technology.

This large review led by University of Tasmania’s Pam Chen – President of the Advanced Practicing Podiatrists-High Risk Foot investigated through a systematic review and meta-analysis, if health literacy is associated with diabetic foot disease, its risk factors, or foot care.

Joint Australian research led by Prof Viv Chuter's Uni of Newcastle team and Prof Stephen Twigg's Uni of Sydney team found people with neuropathy perform less exercise and walking than those without. Plus, those with foot ulcer history sit more than those without.

An Australian study led by Dr Rob Commons and Dr Ed Raby surveyed Infectious Diseases Consultants from right around Australia and New Zealand has found that diabetes-related foot infections (DFI) make up 20% of all their work and are managed very differently between consultants.

A new systematic review has found multiple studies have implemented indigenous diabetic foot health programs, but very few have evaluated their clinical outcomes. Prof Viv Chuter’s busy team reviewed 13 studies: 5 implementing podiatry services and 8 education programs.

University of Wollongong researchers investigated the health-related quality of life among adults living with diabetic foot ulcers, & found those with diabetic foot ulcers have poor overall quality of life which was worse in those with larger ulcers, ulcers for longer, and ulcers complicated by ischaemia or infection

A new Australian study led by Dr Alex Barwick from Southern Cross University and Dr Pete Lazzarini from QUT found 49% of people with diabetes and 43% with peripheral neuropathy mostly wore outdoor footwear in the past year that did not meet DFA Footwear guideline recommendations for DFU prevention.

What happens with the results?

We will let you know about the results throughout the study. During Rounds 2 and 3, broad results will be made available as this helps the decision-making process during Rounds 2 and 3. At the completion of the study, a report will be written by Diabetic Foot Australia describing the results and will be published on our website. A peer-reviewed journal article will also be completed describing the results.

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Identify Research
Priorities

We can identify the agreed priority research questions on diabetes-related foot disease according to all stakeholders that need to be answered to help end avoidable amputations.

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Assist
Researchers

It can assist researchers to develop important and clinically relevant future research that should have relevance and impact in Australia.

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Focus on Foot funding

Provide the data to immediately recognise the priorities and give a greater focus on improving the current 0.2% allocated within the diabetes funding allocation.

FAQ's

The study aims to determine what a broad range of people think are the most important questions about diabetes-related foot health and disease that should be answered by research. The study is led by Diabetic Foot Australia (DFA), the peak body related to diabetes-related foot disease in Australia in partnership with La Trobe University. 

Any person with experience in the field of diabetes-related foot health and disease is invited to participate. This includes people living with diabetes, a carer of a person with diabetes, health professionals involved in the care of people with diabetes and foot problem, and researchers, industry representatives and government agencies. All participants must reside in Australia and being part of the study is voluntary. 

If you want to take part in this study, we will ask you to complete 3 surveys over 3 months.

  • In Round 1 you will be asked to nominate three research questions related to diabetes-related foot health and disease that they think should be answered by research.
  • In Round 2 you will be asked to select your top 10 research questions from the list of questions suggested by all the participants following Round 1. The top 10 questions for the whole group, and from each group of participants who identify themselves as living with diabetes, health professionals, researchers or from industry will be determined for Round 3.
  • In Round 3 you will be asked to rank a final set of 10 questions in order from 1 (highest priority) to 10 (lowest priority) for the whole group, and also the sub-group that you identified with.

The Round One survey will be open throughout the month of August for four weeks, with the Round Two and Round Three surveys to follow in October and November 2020.  We do need participants for all three rounds, so make sure to join during the Round One survey in August to avoid missing out.

If you no longer want to complete the questionnaire, simply close the web browser. If you change your mind after clicking on the ‘Submit’ button, please email to request the withdrawal of information:  [email protected]

If you would like to speak to us about the study, please use the contact details below:
Name: Dr Byron Perrin
Organisation: La Trobe University
Position: Head of Department, Rural Department of Community Health
Telephone: 03 9479 1443
Email: [email protected]

Yes!  We're publicising this study though our website and social media, and have asked relevant organisations to promote the project. Word-of mouth promotion is also encouraged.

Just remember we need participants who meet the following criteria:  

  • Reside in Australia 
  • People living with diabetes, a carer of a person with diabetes, health professionals involved in the care of people with diabetes and foot problem, and researchers, industry representatives and government agencies.

The personal information you provide will be handled in accordance with applicable privacy laws, any health information collected will be handled in accordance with the Health Records Act 2001 (Vic). Subject to any exceptions in relevant laws, you have the right to access and correct your personal information by contacting the research team.

Click on the Participant Information Statement below to read more. This project also has Ethics Approval from La Trobe University: HEC20282.

Joint Banner

This research is supported by Diabetic Foot Australia and Latrobe University with Ethics Approval - HEC20282